Experiencing Communications with My Spiritual Guardian Involves a Series of Experiments
In a heartfelt article written by Marisa Wexler, MS, we follow the story of 12-year-old Juliana, a brave girl living with Angelman syndrome. For almost a year, Juliana has been using an iPad as her augmentative and alternative communication (AAC) device, helping her connect with the world in her unique way.
On her last day of school, however, Juliana faced a challenging day. As she descended the stairs that morning, her screams echoed through the house, growing louder with each step. Despite her struggles, Juliana managed to accept an award from her principal, a testament to her resilience.
Juliana's half-eaten breakfast was a sign of trouble that day. When asked how she felt, she responded with her talker that she felt good. However, after calming down, she mentioned that her tummy hurt. To soothe her discomfort, medicine was administered.
The article offers a newsletter subscription for those interested in updates about Angelman Syndrome. It is important to note that the article serves as a news and information website and does not provide medical advice, diagnosis, or treatment.
Marisa Wexler, the author, is not only a writer but also currently involved in testing a treatment that uses a specialized diet to regulate blood sugar levels in children with Angelman syndrome. The article discusses a treatment targeting miR-134, a RNA molecule, that has shown promise in limiting seizures in mice.
The opinions expressed in the article are intended to spark discussion about issues pertaining to Angelman syndrome. Always seek professional medical advice regarding a medical condition. The family had a plan to make up for any missed special events, but there were no do-overs for this day.
Despite the challenges, Juliana's story serves as a reminder of the strength and determination of those living with Angelman syndrome. Her use of different means to communicate, including gestures, sounds, and her AAC device, demonstrates her ability to adapt and connect with the world around her.
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